Transition Planning

Preparing for adult healthcare and independent T1D management

Transitioning to Adult Endocrinologists

When to Start the Transition

  • •Begin discussing transition around age 16-17
  • •Complete transition by age 18-21 depending on readiness
  • •Consider timing around major life changes (college, moving out)

Finding an Adult Endocrinologist

  • •Ask your pediatric endo for recommendations
  • •Check if they specialize in or have experience with young adults with T1D
  • •Verify insurance coverage and office location
  • •Schedule a "meet and greet" appointment before officially transferring care

Making the Switch Smoother

  • •Request complete medical records from pediatric office
  • •Bring list of current medications, devices, and supplies
  • •Discuss your goals and concerns openly at first visit
Insurance & Healthcare Navigation

Understanding Your Insurance

  • •Learn the difference between copays, deductibles, and out-of-pocket maximums
  • •Know which doctors and pharmacies are in-network
  • •Understand prescription coverage and prior authorization processes
  • •Keep copies of insurance cards and policy information

Aging Out of Parent's Insurance

  • •You can stay on parent's insurance until age 26
  • •Explore options: employer insurance, marketplace plans, Medicaid
  • •Pre-existing conditions must be covered under ACA
  • •Don't let insurance coverage lapse - avoid gaps in care

Managing Prescriptions

  • •Learn to refill prescriptions before running out
  • •Set up automatic refills when possible
  • •Know how to handle prior authorizations and appeals
  • •Research manufacturer copay assistance programs
College Preparation with T1D

Campus Resources

  • •Register with disability services for accommodations
  • •Connect with campus health center and locate nearest hospital
  • •Find local endocrinologist or diabetes clinic
  • •Research campus dining options and carb counting resources

Roommate Communication

  • •Educate roommates about T1D symptoms and emergency response
  • •Show them where you keep glucagon and glucose tabs
  • •Discuss how they can help during lows or highs
  • •Keep refrigerator space for insulin if needed
Building Self-Advocacy Skills

Taking Ownership of Your Care

  • •Schedule and attend appointments independently
  • •Ask questions and voice concerns with healthcare team
  • •Track your own data and identify patterns
  • •Set personal diabetes management goals

Advocating in School & Work

  • •Know your rights under ADA and Section 504
  • •Request accommodations confidently (exam time, breaks, etc.)
  • •Educate professors/supervisors about your needs
  • •Stand up for yourself if accommodations are denied
Emergency Preparedness for Independence

Building Your Emergency Kit

  • •Multiple glucagon kits in different locations
  • •Extra supplies (pump supplies, CGM sensors, insulin pens)
  • •Medical ID bracelet or necklace
  • •Emergency contact list and medical information card

Creating Your Support Network

  • •Identify local friends who can help in emergencies
  • •Share CGM data with trusted contacts
  • •Know when to call 911 vs. handling situation yourself
  • •Keep emergency numbers programmed in phone