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Long-term health screening

Preventing complications and staying well

In short

Regular screenings are essential for maintaining long-term health with T1D. Early detection and prevention are your best tools for avoiding complications.

Regular screening schedules

Annual screenings

  • Comprehensive eye exam with dilation by ophthalmologist
  • Urine microalbumin test for kidney function
  • Comprehensive foot exam with monofilament testing
  • Lipid panel (cholesterol, triglycerides)
  • Thyroid function tests (TSH, T4)
  • Blood pressure monitoring at every visit

Quarterly screenings

  • A1C testing every 3 months
  • Endocrinology appointments for diabetes management
  • Review of CGM and pump data with healthcare team
  • Weight, blood pressure, and general health assessment

Additional screenings

  • Celiac disease screening at diagnosis and periodically
  • Vitamin D, B12 levels if indicated
  • Cardiovascular risk assessment annually
  • Depression and anxiety screenings
  • Dental exams twice yearly

Eye, kidney, and foot health monitoring

Eye health (retinopathy prevention)

  • Annual dilated eye exams starting 5 years after diagnosis
  • Report any vision changes, floaters, or flashes immediately
  • Optimal blood sugar control significantly reduces risk
  • Blood pressure control also protects eye health
  • Early treatment can prevent vision loss if caught early

Kidney health (nephropathy prevention)

  • Annual urine microalbumin and serum creatinine tests
  • ACE inhibitors or ARBs if early kidney disease detected
  • Maintain blood pressure below 130/80 mmHg
  • Stay well-hydrated and limit sodium intake
  • Avoid NSAIDs (ibuprofen) which can stress kidneys

Foot health (neuropathy prevention)

  • Daily self-foot inspections for cuts, blisters, or changes
  • Annual comprehensive foot exam with monofilament and vibration testing
  • Proper-fitting shoes and diabetic socks
  • Never go barefoot, even indoors
  • Report numbness, tingling, or pain to your doctor immediately

Cardiovascular health and T1D

Understanding cardiovascular risk

  • T1D increases risk of heart disease and stroke
  • High blood sugar damages blood vessels over time
  • Other risk factors: high blood pressure, high cholesterol, smoking
  • Risk increases with longer duration of diabetes
  • Women with T1D face higher relative risk than men

Cardiovascular protection strategies

  • Maintain A1C as close to target as safely possible
  • Control blood pressure (target <130/80 mmHg)
  • Manage cholesterol with diet, exercise, and medication if needed
  • Don't smoke - if you do, get support to quit
  • Regular exercise: 150 minutes moderate activity weekly
  • Healthy diet: Mediterranean or DASH diet patterns

Warning signs to never ignore

  • Chest pain, pressure, or discomfort
  • Shortness of breath or difficulty breathing
  • Pain in arms, back, neck, jaw, or stomach
  • Sudden severe headache or vision changes
  • Numbness or weakness, especially on one side
  • Call 911 immediately if you experience these symptoms

Managing other autoimmune conditions

Common comorbid conditions

  • Thyroid disease (Hashimoto's or Graves'): affects 15-30% of people with T1D
  • Celiac disease: 10 times more common in T1D population
  • Addison's disease (adrenal insufficiency)
  • Vitiligo (skin pigmentation disorder)
  • Pernicious anemia (vitamin B12 deficiency)

Screening and monitoring

  • Thyroid function tests (TSH) annually
  • Celiac antibody screening at diagnosis and if symptoms develop
  • Be alert for symptoms: fatigue, weight changes, GI issues, skin changes
  • Coordinate care between endocrinology and other specialists
  • Understand how additional conditions affect diabetes management

Staying current with T1D research and treatments

New technology and treatments

  • Automated insulin delivery (AID) systems: hybrid closed-loop technology
  • New ultra-rapid insulins and longer-acting formulations
  • Improved CGM accuracy and wearability
  • Islet cell transplantation advances
  • Immunotherapy research for prevention and treatment

Staying informed

  • Discuss new technologies with your endocrinology team
  • Follow reputable sources: ADA, JDRF, Beyond Type 1
  • Attend diabetes conferences or webinars
  • Join clinical trials if eligible and interested
  • Connect with the T1D community for real-world experiences

Questions to ask your team

  • "Am I a candidate for automated insulin delivery systems?"
  • "Are there new medications that might work better for me?"
  • "What clinical trials are available in our area?"
  • "How can I optimize my current treatment regimen?"
  • "What new technologies should I consider?"